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CPB Youth Leadership Forum
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Mission: To raise awareness and promote community action around issues pertaining to childhood life-threatening/limiting illness. Members: 100 Ages: 14-25 Website: www.practicalbioethics.org
9 comments posted #9 06/23/06 9:09 PM posted by melissa This is an excellent question. What do you guys think? How can teens and young adults make their wishes known in this situation? What questions should doctors and parents be asking their kids in end-of-life situations? If it were you in this situation, what would you like people to do?
#8 06/22/06 1:40 PM posted by CPB YLF I was the last person to post, at 1:39pm. I forgot to sign my post. eaa
#7 06/22/06 1:39 PM posted by CPB YLF The first half of the documentary was a powerful experience for me, and I think for all of us in attendance. I feel I could post about any number of things, but I feel compelled to talk about Justin, the young man who battled leukemia for more than 10 years. What did he really want? When the doctor spoke with him…when he was on film…he appeared ready to take every course of action possible to fight his illness. However, his grandmother was angry about the triple dose of chemo…she insisted that Justin did not want to go through with it. Justin’s mother also spoke about his embarrassment when he became paralyzed from the waist down. We never get to talk with Justin without his parents present. How do we ensure that young people like Justin have the opportunity to make their true wishes known? Are his true feelings those he expresses (in a rather limited manner) on camera with his mother present, or are they those he confides to his grandmother, in private?
#6 06/22/06 1:24 PM posted by CPB YLF I’m looking forward to watching the second half tonite. I’m a little apprehensive, but also anxious to see what happens to the kids and their families. jc
#5 06/22/06 1:13 PM posted by CPB YLF I loved watching with so many other people last night at UMKC. It would have been a very different experience alone. I am grateful for the opportunity to share this journey with the families whose lives were so shaped by illness. If the name had not already been used, this could have been called “Profiles in Courage.” LDW
#4 06/22/06 1:12 PM posted by melissa Wow, you guys took away a lot. The film does make us appreciate the “little” things that really are everything. Please tell us what you think of Part Two.
#3 06/22/06 12:05 PM posted by CPB YLF I believe that the documentary will live long in the hearts of all who see it no matter who you are; your age; your gender; your culture; your health. We are all deeply touched by this truth of life and those who are so kind to share their journeys. We will not forget these children and the importance of honoring their honesty, their thoughts, and their pain; but as important we must never forget to honor their spirit. They have taught us to look inside ourselves and find ways we can reach out to one another. They taught us the importance of steadfast friendship. DKB
#2 06/22/06 1:22 AM posted by CPB YLF We watched Part One tonight with about 60 people in attendance. What an amazing production and what an amazing group of young people we had tonight! We had a panel of three survivors of life-threatening illness, and they were so powerful as they talked about their illnesses and how they and their families had coped. The main take-away message seems to be that we all want to be more grateful and less complaining. CL
#1 06/21/06 11:54 PM posted by melissa Hi CPB Youth Leadership Forum. How many of you saw Part One? What are your thoughts?
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